December 18th, 2017, a year ago today I started my first round of chemotherapy. I remember the feelings vividly. I felt a sense of relief knowing that I was getting a strong dose of medication that would kill any cancer cells left behind after surgery. I remember sitting in the chair getting ready to get the IV started and I felt this overwhelming feeling of sadness. As I started to cry and a sweet lady walked over to me and knelt down and gave me a hug, she told me everything was going to be ok. I was so scared that day that all I wanted to do was go home and sleep away the pain.
Fast forward to today, December 18th, 2018 being in remission. Life this past year has not been easy. I believed and others have too, that after my last treatment in February that I was going to be done and move on with my life and just go to check ups every 6 months. Well it hasn’t been that easy. In May after my 3 month follow up CT scan that was done monitor the nodules in my kidneys and right lung that was found in early Janruary. I was told that everything was ok and recommended to have another CT scan done in 3 months, which was September 19th. I recieved a call around 10 o’clock September 21st, it was the nurse from my Oncology office. All I remember is hearing, “Dr. Geetha would like to see you in her office today to discuss your CT results.” Now, had already having cancer the last thing you want to hear is the Dr. wants to see you in the office. Because your mind automatically goes to “omg not cancer again.” I left work in a panic having anxiety come over me, not being able to think rationally. All I could think was “not again,” this can’t be happening to myself and my family for the second time. Myself, my husband and my mom went to my appointment and the oncologist pulled up my scan and showed us a new finding in my right lung that she was concerned about and wanted to have a PET scan done to make sure there wasn’t a reoccurence. I had a PET Scan done the following week and between the Pulmonolgist and my Oncologist they recommend I have a biopsy. I became very overwhelmed with anxiety, my mind was in a fog and all I wanted to do was sleep. I kept saying to myself, “why am I being tested, why are these findings keep coming up?” October 8th, I had my right lung biopsy done and it was a successful biopsy with no findings of reoccurence. That was a huge relief! I felt I could finally move on with my life and be “normal” again.
Well, starting in late October I started having some extreme pain in my left elbow and my range of motion was becoming difficult. With the removal of lymph nodes durning the mastectomy there could be a possibility of lymphedema. My oncologist suggest I see a Lymphedema specialist so I did, and begun doing OT once a week to every other week. The first week in November I started seeing swelling and being in extreme pain in my feet, legs and right shoulder. I was having troubles sleeping because I would get extreme hip pain at night. When I would awake in the mornings I could barely walk from the pain in my joints. I contacted my oncologist and asked if I was having some side effects from my medication. She suggested I see my primary care team to see what was going on since she didn’t think it was from the medication. So I did, and they suggested that if the pain wasn’t better in 2 weeks that I see a rheumatologist. I started to become extremely frustrated at this point because all I wanted was to be pain free and stop seeing doctors and having tests done. I just wanted to start working out again and to stop worrying about all these tests. I became deeply depressed at this point and just wanted to stop everything, all medications, stop going to appointments etc. I just wanted to live a “normal” life again. But I thought to myself, “what is normal anymore?”
So, in the middle of November I had received a call from Dr. Depew, my pulmonologist. He wanted to meet with me but before he see me he wanted me to have a CT scan done, once again of my chest to check to see if the nodule in my lung was still there, if it had grown, etc. December 5th, I was scheduled for another CT scan of my chest, abdomen and pelvis. I received a call from Dr. Depew. He had explained the finding in my lung back in September was gone! If you can imagine the sense of relief I had! But he said there were two more findings in my pelvis. An 11mm sclerotic focus in my right iliac bone and a 9 mm sclerotic focus within the right ischium. I thought to myself, “you have got to be freaking kidding me, when will this end?” So he suggested I have a full body bone scan from head to toe. But in the mean time I was scheduled for another breast reconstruction surgery prior to the scan that I was unaware of until I met with my plastic surgeon back in October, who said I needed to have some stuff fixed. I have had people ask me if this surgery was my choice? My response was, “no.” But I also thought to myself are you freaking kidding me? Hmmm…was cancer my choice? So, for those who want to know if this second reconstruction was my choice, no it wasn’t a choice it was something that needed to be done because cancer decided to take my breast.
So here I am December 18th, 2018. Another surgery done and another scan done as well. I will meet with my oncologist this week to discuss the results from the scan. I have confidence this is just another stupid finding and that I will be able to move forward with my life. Although, there are others who are going through much more than I am. I enjoy sharing my journey and I share it in hopes inspire others. As a cancer survivor I constantly live in fear of reoccurrence. There are days I sit on the edge of my bathtub and cry. Somedays I feel like a failure because of what cancer has done to me. I decided to to share my journey because it helps me cope and I pray that I can help another person make it through their journey. I am constantly learning everyday of new ways to cope with being a survivor. Life after cancer sucks but I am here and I am a SURVIVOR. One thing I have learned from my journey is to have patience, to forgive, and to love more! We are not promised tomorrow so enjoy the day you are given!
Much love y’all,
Amanda